Exposures

June 10, 2008

 Below are all of our past and present television exposures.

• IWitness Documentary Entitled “May T.S. Kami”  (May, 2008)
• RxMen (2007) 
• Emergency (2006)

• Salamat Dok (2006)

Other Videos

• Lay Forum: Twitch and Shout (March, 2007)

Click HERE to watch all videos               

 

Twitch and Shout: A Closer Look at Tourette Syndromme

June 9, 2008

This forum was held last March 26, 2007. At this time the organization was not yet formally registered. At this time, we were just a support group with only professionals (medical doctors, one registered nurse, and a TS advocate) as members. The forum was rich with discussions on what Tourette Syndrome is as a medical disorder and its behavioral aspect. Talks were given by medical doctors. Testimonials were given by a TS- diagnosed and a mother who has a son with TS. There were also group sharing and assessments done during the forum.

PROGRAMME

 

Registration: Anton Vatanagul, MD

 

Invocation: Judy Sevilla, MD

 

Pambansang Awit: Janet Santiago, MD

 

Opening Remarks: Joven Cuanang, MD

 

Testimonial:

Marlon Barnuevo ( a TS patient and advocate)

Obie Casimiro (mother of a 12 y/o with TS)

 

Lectures:

Understanding Tourette Syndrome

By: Dominic Jamora, MD

 

Behavioral Aspect of Tourette Syndrome

By: Bernadette Arcena, MD

 

Open Forum - Resource Persons:

Leonardo Fugoso, Jr.,MD

Head, St. Luke’s

Movement Disorder Center

 

Dominic Jamora, MD

Adult Neurologist

Movement Disorders Specialist

 

Bernadette Arcena, MD

Adult Psychiatrist

 

Closing Remarks: Leonardo Fugoso, Jr., MD

 

Masters of Ceremony:

Geraldine Mariano, MD

Maria Rowena Balmores- Victorino, M.Ed.,RN, BSN

 

Support Group Facilitation:

Anton Vatanagul, MD

Marlon Barnuevo

Maria Rowena Balmores- Victorino, M.Ed.,RN, BSN

 

Other Related Links:

SEE PICTURES OF THE FORUM HERE

DR. FUGOSO TALKS ABOUT TOURETTE SYNDROME

TESTIMONIAL BY A TOURETTE SYNDROME DIAGNOSED-our very own Marlon Barnuevo

TESTIMONIAL BY A MOTHER WHOSE SON IS DIAGNOSED WITH TS

 

Activities

PAST AND PRESENT ACTIVITIES 

Since the organization has been formed last March of 2007, there has already been a couple of activities done to actively advocate Tourette Syndrome in the Philippines.

2008

>> JUNE

                These series of exposures were done primarily to talk about Tourette Syndrome in as many insitutions as we possibly can. This is part of our “awareness campaign”. This project is continuous as long as we continuously get requests from institutions in all setting that they want us to visit them. This is a great project to be proactive in disseminating information for all Filipinos who may want to open their minds and hearts to individuals suffering from Tourette Syndrome.

If you want the Philippine Tourette Syndrome Association to speak in your school, hospital or just anywhere about the whole concept of Tourette Syndrome for awareness and education purposes, please feel free to contact us. This is for free. All you have to do is to contact 0915.4424340, send your name and your request, the preferred schedule for the forum and we’ll be there in no time. We will just request for the institution to provide us the LCD projector for a better presentation.

 

• 1st Campus Tour Exposure: West, Triangle Quezon City, May 31, 2008 <see pictures>
• 2nd Campus Tour Exposure: Movement Disorder Center, St. Lukes Medical Center, June 07, 2008 <see pictures>
• 3rd Campus Tour Exposure : UP Dilliman, College of Education, Rm 105, (PLEASE STAND BY FOR THE EXACT DATE THIS JUNE, 2008)

>> MAY 5, 2008

• IWitness Television Exposure: This was our very recent television exposure. It was with the team of Ms. Sandra Aguinaldo in IWitness documentary on Tourette Syndrome entitled “May T.S. Kami”. It was aired in Channel 7 last May 5, 2008.  This exposure spark the need for us to initiate the campus tour series since many people have been contacting the organization eversince its air on television last May 5. <see pictures> <watch the video documentary part 1 of 3> <watch part 2 of 3> <watch part 3 of 3>

>> FEBRUARY- APRIL

• Group Counseling: This was done to employ group counseling as intervention for a group of five individuals diagnosed with Tourette Syndrome. This specific activity perked up the organization to become proactive again in advocating individuals with TS since the formation of the core group last February of 2007.

2007

• Twitch and Shout: Lay Forum for Tourette Syndrome: This forum was done at Cathedral Heights Building, St. Lukes Medical Center last March 26, 2007 <see the details>

          

 

 

 

Membership

  The membership is open to everybody for that matter who wishes to be actively involve in the provision of services for the PWTS in order for them to achieve optimum development and to not only be functional individuals but also functional individuals in society. Aside from the existing network, we encourage more professionals particularly doctors specializing in neurology, movement disorder specialists, pediatricians, nurses and other medical specialists, psychologists, guidance counselors, educators, SPED teachers including those from other fields. We also encourage lay persons to join PTSA’s advocacy for the PWTS as part of its social responsibility.

We have two kinds of memberships, namely:

1. INDIVIDUAL MEMBERSHIP: those people who wish to be actively involve in the organization and;

2. FAMILY MEMBERSHIP: families who wish to be actively involve in the organization

The individual membership is only 150 pesos whereas the family membership is at 300 pesos. The advantage of registering as a family is that everytime there’s an activity that will require you to pay, you will only pay one time for your whole family. Registrations for membership will be valid for one whole year and is encouraged to be renewed every year thereafter. The organization is requiring for interested parties to accomplish an application form for whichever kind of membership they want to take. Then they will pay for the amount required for each kind. Once duly accomplished forms and payment are recieved the member will be given a membership ID card via postmail including a letter citing your benefits and responsibilities as a member.

 

 DOWNLOAD THE MEMBERSHIP APPLICATION FORM

FOR INDIVIDUAL MEMBERSHIP, download  here

FOR FAMILY MEMBERSHIP, download here

 

 

Our Core Values

Passion in providing compassionate service. 

Trust in the process of helping people with Tourette Syndrome achieve optimum development.

Strengthen skills, thinking, spirit and character of people with Tourette Syndrome to be better individuals.

Aspire for continous growth through innovation of appropriate and efficient services.

PTSA upholds its core values to give the best service for its clientele. We aspire to passionately give our services in the most compassionate way. We believe that the best service is rooted from our intimate concern for the PWTS and their families. With this at hand, we continuously achieve high performance for delivering the services through careful trust to the process of providing nurturance that the PWTS deserve. Furthermore, this clientele are also given opportunities for their optimum development by strengthening their skills to cope with the disorder better, their thinking to make better decisions, their spirit and character to overcome adversities in life. And finally, we sustain these services through consistent innovation that will be appropriate and efficient for the changing times.

 

Our Mission

The zealous pursuit of the vision is through PTSA’s allegiance to continuously:

·         Muster small and large sectors of support for the PWTS;

·         Foster the PWTS in all aspects of their development to become not only functional individuals but also functional individuals in society

·         Carry out seminars and workshops on updated information on Tourette Syndrome especially program development and treatment/ management  of the disorder from different disciplines (medicine, education, counseling, psychology) including teaching strategies and parenting

·         Bridge the gap of different disciplines (medicine, education, counseling and psychology) in order to develop and administer more appropriate and relevant programs specifically designed for PWTS

·         Promote research on Tourette Syndrome in the Philippines from all disciplines (medicine, education, counseling and psychology)

 

Our Vision

PTSA shall always be a leader in advocating the PWTS, their families and significant others to fully understand Tourette Syndrome as a disorder and be able to give them opportunities and help them achieve their optimum development to function not only as individuals but individuals in the society.

What is the Philippine Tourette Syndrome Association?

The Philippine Tourette Syndrome Association (PTSA) is the first and only non-profit, non- stock organization about Tourette Syndrome based in the Philippines. It is an association of (1) professionals from the field of medicine, counseling, education and psychology and (2) lay persons particularly the individuals diagnosed with the disorder, their parents, relatives and significant others.

Originally organized in February 16, 2007 as a “Tourette Syndrome Core Group” and registered with the Securities and Exchange Commission on April, 2008 as Philippine Tourette Syndrome Association (PTSA). The organization was made because of a common goal to address the specific needs of the” Persons with Tourette Syndrome “ (PWTS) and be able to help them recognize their inherent capabilities in coping with the disorder better and develop their full potentials to become successful individuals in their own little way.

PTSA recognizes the significance of nurturing this special group as part of the Philippine’s society noting that many Filipinos are unaware of the existence of the disorder in the country. Furthermore, misconceptions about the disorder are a frequent occurrence. With PTSA’s efforts to disseminate information about the disorder will enable replacement of those misconceptions with reliable facts from the most recent literature on Tourette Syndrome not only from the Philippines but from resources all over the world.

PTSA as an organization is powered by its human workforce of professional experts with a wide array of experiences in various disciplines that are needed to suit the needs of the PWTS. This workforce makes the organization dynamic as it is multi-faceted in nature.